Hey Jude – Why the Truth Matters

Dear Jude,

In one month, you’ll turn three. Three-years-old. I remember Lillianne’s third birthday party. It was at the park, on the playground. Eilie was only just four-months-old and just hung on to whoever was holding her like a sweet little koala nugget. Lillianne was so cute. She wore a blue dress with white polka dots and her little yellow “heeled” sandals. We set up tables and even though it was 9:00 that June morning, it was swelteringly hot. Lillianne laughed and ran around, sliding and swinging. She didn’t even care that her friends weren’t there yet; if you’d have been there, you’d have been a year and a half and no doubt, hot on her heels, sliding and swinging a few steps behind her with shouts of, “Yee-yan,” because you couldn’t say Lillianne.

By now, those wobbly steps and funny baby talks would’ve turned into running at full tilt and chattering in full sentences…we’d know what your favorite foods and colors and characters are. We’d have fussed at you for rule-breaking, worried if we were raising you “okay”, thought about your future…all of the things parents do. I’d be planning your birthday party, of course, and, of course, complaining about how “hard” it is to do things during the holidays.

 

The reality is that I’m doing none of those things. I’m expecting your baby brother or sister to be delivered at 36 weeks and 5 days in three weeks and three days (but who’s counting?) on December 21. I’m anxiously anticipating the arrival of your last sibling five days before your birthday.

The day before yesterday, Mystery Baby turned 33 weeks; for you, 33 weeks was the last day of your life with us. We only had you with us for 33 weeks. If I’d known I had to form a lifetime of memories in 33 weeks, I wonder how much I’d have done differently?

 

Yesterday, you’d have been 35 months. We went to Atlanta over the holiday weekend to get Mystery Baby’s little animal from the Georgia Aquarium, an accidental tradition that now means so much. Your Jude Whale, by the way, is much loved and is passed around by your sisters. We got your last little sibling a Harbor Seal. I meant to get a sea lion, but oh well. It’s a cute and soft little thing, and I think Mystery Baby will like it. You’d have loved Jude Whale. It’s kind of ironic that your little whale was pure white, completely innocent and angelic, like you. I always think of you when I see the belugas now. They’re so docile and gentle and ethereal, like you.

I digress. Saturday night, I had a hard time going to sleep. I felt unwell. It was probably fatigue or just un-actualized anxiety. Thirty-three weeks. I had a few cramps and mentally plotted exactly what we’d do if I went into labor or if there was an emergency. Thankfully, there wasn’t.

I woke up at 4 a.m. and thought about the night we lost you. I thought about the things that happened and about how recently, I’ve read about other moms whose babies were having decels and other issues like you were. Those babies were delivered, and those babies lived. Your dad and I have assuaged our grief over and over by telling ourselves that something else might have been wrong. I’ve consoled myself with the idea that you at least were in a safe, warm place full of love when your life left this Earth. But I do wonder…and wonder…and wonder…time and time again, for nearly three years now, what if. If they’d have delivered you, would you have lived? There are plenty of pre-term babies born every day who are sustained in NICUs and who live as perfectly healthy and happy children.

Being the skeptic that I am, I wonder and continue to wonder if someone really knows what happened or who has an idea of what happened, and they’re not saying because they’d rather protect people within the institution (Providence Hospital in Mobile, AL) or the institution itself. The thing is, I’m well outside the statute of limitations for any legal action, and honestly, I don’t want anyone’s money. There is on amount of money on this Earth that can possibly make up for you not being here.

The reality is that I just want to know everything. I want to know why if there’s a why. I want to know how if someone knows how. I want to know if someone made a mistake. I want to hear, “I’m sorry,” if they did. I want to know that because of you, someone has changed everything about the way they practice medicine and has made the right decision and has saved so many baby’s lives. I’d like to know that. I just want to know the truth, whatever it is, because I’d like to think it would take some of the burden from my grief.

 

Yesterday, one month before you turned three, we drove home from Atlanta. Having slept poorly, I was tired and uncharacteristically emotional. Irrationally, I engaged your dad in a lengthy conversation about past pains that really don’t impact our marriage now. After all, when better to trap someone in an emotional argument about the past than on a four-and-a-half hour car ride.

I cried three times yesterday. Once was in a Hardee’s bathroom (we’ll call this a “low point”), once at home while I was unpacking. We’ll call this a “revelation moment” because it was when I took my Jude Bear (the one I got at the hospital nearly three years ago when I lost you) out of my suitcase that I started crying all over again. It’s also when it became clear that the real reason I was upset was because of you. It’s because I miss you. I love you so much, and I miss you, and I really just want some kind of closure. I just want to know the truth about what happened. I realize no one can assure me that your outcome would or wouldn’t have been different had the doctor read the ultrasound correctly; had she decided to deliver; had they rushed us straight to the Children’s & Women’s hospital with the NICU, etc. However, I feel someone can tell us if—in hindsight, they made a mistake. They made a bad call. They weren’t as attentive as they should have been. I have no idea. Did they do everything correctly?

I don’t want someone to blame because that won’t change anything. I just want closure. Is that too much to ask? There’s that line that goes, “You want the truth? You can’t handle the truth!” I can handle the truth. I don’t think it’s fair for me to have anything but the truth.

I think that’s true for all moms who’ve suffered a loss. We deserve the truth. After all, I had a healthy pregnancy with Lillianne. I had a healthy pregnancy with Eilie. Mystery Baby is thus far very healthy. In these final three and a half weeks of me ever being pregnant again, I’m absolutely gripped with anxiety and paranoia because I don’t know what happened or if your passing was ultimately the result of human error (i.e., the choice of inaction) or if it was truly something completely mysterious. Is it normal for babies with decelerations, severe tachycardia and bradycardia to not be delivered immediately? Or rather, more importantly, how much of the heartbeats being read were mine, and how many were yours? What happened?

 

Most days, I’m not a crazy person. Most days, I don’t cry. Most days, I don’t rehash painful topics with your father. Yesterday just wasn’t most days. I’m sorry for days like that, that I have to have days like that. I’m sorry that I hate being pregnant because of the constant anxiety. I mean, don’t get me wrong, I was never a fan of being pregnant, but after losing to “causes unknown”, pregnancy is terrorizing. I’ve visited the hospital three times during this pregnancy for legitimate concerns (of course, everything is fine; everything is always fine) for $125 a pop (shout out to my sponsor, Visa). I’m more afraid of getting a steroid shot and of Mystery Baby needing NICU time than I am excited to meet Mystery Baby in three weeks. Your dad cannot stand when I’m pregnant because I’m so high strung. It’s truly unfortunate. I feel so alone so often because being the one who’s pregnant, I’m literally the only one who can determine if there’s a problem or whatever. I’ve spent six months wondering if this weird little pain in my leg is a blood clot; it’s been checked twice. It’s not. It keeps getting worse, like the anxiety.

 

I wish above all things that I could hug you and tell you in your sweet ear the story about what happened. Instead, I’ll spend the rest of my life wishing. Wishing I knew. Wishing I could hug you. Wishing that I didn’t have two potential realities: the one where you live and the one where we have Eilie because I know that had life not taken the course it did, we wouldn’t have Eilie. The little seeds that made her wouldn’t have been there when and if we ever made baby three. It would be different seeds, a different life. A different kid. A different everything.

But, alas, that’s not this reality. In this reality, you are with me in spirit. I cannot hug you or hold you. We have Eilie, who is so sweet and fun and funny, and we have Mystery Baby, who I hope we get to raise on Earth. I guess we’ll see. As the weeks, days, and hours crawl by, I become more and more anxious and despondent. I lessen my grip on hope just in case it happens again. I do this because I don’t know what happened. That’s the price of not knowing the whole and absolute truth.

I love you and miss you, sweet boy. In my heart, I’m always hugging you and smiling at your laughing eyes. 

Love,

Mommy

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